Below is a non-exhaustive list of organizations that support individuals with neuroimmunologic conditions. Many provide resources for multiple diagnoses beyond their primary focus.
National MS Society (NMSS)
A leading organization offering education, support services, and research funding for the MS community.
Multiple Sclerosis Association of America (MSAA)
Provides MRI assistance, educational materials, cooling gear, and direct support for individuals with MS.
MS Foundation
Dedicated to empowering people with MS through outreach, education, and supportive services.
The Sumaira Foundation
Founded by a patient, this nonprofit focuses on advocacy, education, and support for those with NMOSD and MOGAD.
The Guthy-Jackson Charitable Foundation
Focused on advancing research, treatments, and awareness for NMOSD.
AE Alliance
Supports patients and families affected by autoimmune encephalitis through awareness, education, and research.
Mogad Initiative For Navigation and Direction
Supports patients affected by MOGAD through awareness and education.
Find a Neuroimmunology Specialist
If you’re newly diagnosed or exploring care options, this directory is a great place to start. It features neurologists with deep expertise in neuroimmunology—many of whom have completed advanced fellowships and care for complex cases every day. You'll also find nurse practitioners and other essential care team members who play a critical role in supporting patients throughout their journey.
Whether you're seeking a referral or simply want to learn more about the specialists in your area, we’re here to help you make informed decisions about your care.
Explore ongoing clinical trials in neuroimmunology and MS-related conditions throughout the Chicagoland region. Each site below lists current studies, the principal investigators (PIs), and coordinator contacts for enrollment or more information.
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Principal Investigator: William L. Conte, MD, MS ||| Study Coordinator: Michelle Ham, RN – [email protected]
REMODEL-2 – Efficacy and Safety of Remibrutinib Compared to Teriflunomide in Participants With Relapsing Multiple Sclerosis
FREXALT – Efficacy and Safety Studies of Frexalimab (SAR441344) in Adults With Relapsing Forms of Multiple Sclerosis
FREVIVA – Efficacy and Safety Study of Frexalimab (SAR441344) in Adults With Nonrelapsing Secondary Progressive Multiple Sclerosis
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Principal Investigator: Carolyn Goldschmidt, DO ||| Study Coordinator: May Navamon Aunaetitrakul – [email protected]
SOSTOS – A randomized, open label, multi-center, active-comparator study to assess the efficacy, safety and tolerability of ofatumumab 20mg sc monthly versus continued current therapy in relapsing-remitting multiple sclerosis after elevation of serum neurofilament light levels
Principal Investigator: Afif Hentati, MD ||| Study Coordinator: May Navamon Aunaetitrakul – [email protected]
FREXALT– Master protocol of two Phase 3, randomized, double-blind efficacy and safety studies comparing frexalimab (SAR441344) to teriflunomide (Aubagio) in adult participants with relapsing forms of multiple sclerosis
Principal Investigator: Afif Hentati, MD ||| Study Coordinator: Martha Cruz – [email protected]
OPTIS – Performance and safety of a digital tool for the unsupervised self-assessment of neuromyelitis optica spectrum disorder
Principal Investigator: Carolyn Goldschmidt, DO ||| Study Coordinator: May Navamon Aunaetitrakul – [email protected]
ENABLE – to evaluate safety, effectiveness, and to gain insight into the treatment experience of participants prescribed BRIUMVI® (ublituximab-xiiy) in the real-world setting
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Principal Investigator: Fabian Sierra-Morales, MD ||| Study Coordinators: Shamam Sarwar [email protected] Toni Ramirez [email protected]
ENABLE – A Study Evaluating the Real World Experience of Participants Treated With BRIUMVI® (Ublituximab-xiiy) for Relapsing Multiple Sclerosis
MEDICAID – The impact of Medicaid on multiple sclerosis therapies and outcomes due to poverty-related barriers
Principal Investigator: Allison Osen, MD ||| Study Coordinator: Shamam Sarwar [email protected]
RESHAPE – A randomized, open-label, parallel-group, non-inferiorirty study comparing efficacy, safety, and tolerability of remibrutinib after switching from ocrelizumab in participants living with relapsing multiple sclerosis, followed by open-label treatment with remibrutinib.
CAR-T therapy in MS – A phase 1, open-label study to evaluate the safety and clinical activity of azercabtagene zapreleucel in participants with B-cell mediated autoimmune disorders
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*Most up to date listings: here
Principal Investigator: Farrah Mateen, MD ||| Study Coordinator: Caroline Gebczak [email protected]
People with multiple sclerosis treated wtih ocrelizumab and GLP-1 agonists
Ublituximab (Briumvi) for early forms of relapsing multiple sclerosis
Ocrelizumab discontinuation in multiple sclerosis
Treatment of inflammatory myelitis and optic neuritis with early vs rescue plasma exchange
Cell-free DNA in MS and Healthy Controls
Principal Investigator: Kailynn Mannella, PhD [email protected]
Motor Outcomes in Mentruating and Peri-Menopausal Women with MS
Principal Investigator: Dr. George Georges | Neurology Investigator: Dr. Bruce Cohen ||| Study Coordinator: Matthew Selle – [email protected]
BEAT-MS – Best Available Therapy Versus Autologous Hematopoetic Stem Cell Transplant for Multiple Sclerosis
Principal Investigator: Dr. Elena Grebenciucova ||| Study Coordinator: Monika Szela – [email protected]
ExTINGUISH – Trial of Inebilizumab in NMDAR Encephalitis
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Principal Investigator: Dr. Veronica Cipriani ||| Study Coordinator: Cheryl Bibbs – [email protected]
RESHAPE – A randomized, open-label, parallel-group, non-inferiorirty study comparing efficacy, safety, and tolerability of remibrutinib after switching from ocrelizumab in participants living with relapsing multiple sclerosis, followed by open-label treatment with remibrutinib.
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Study Coordinator: Alison Wathen – [email protected]
METS for MS – Mood and Exercise Training Study for Multiple Sclerosis
Study Coordinator: Peixuan Zheng – [email protected]
PACE MS – Cognition, Vascular Function, and Physical Activity in Multiple Sclerosis
Study Coordinator: Brenda Jeng – [email protected]
Walking Efficiency and Vascular Function in Multiple Sclerosis
Study Coordinator: Ilaria Santi – [email protected]
Randomized Pilot Study Evaluating the Effect of a 6-Month Exercise Rehabilitation Program on Physical and Cognitive Function in Persons with MS who Use Wheelchairs as a Primary Mobility Device
Study Coordinator: Victoria Flores – [email protected]
REAL MS – Race, Ethnicity, and Active Lifestyle in MS
Study Coordinator: Emily Barron – [email protected]
BIPAMS-C – Behavioral Intervention for Physical Activity in Multiple Sclerosis – Cognition
Study Coordinator: Petra Silic – [email protected]
PAW-MS-GAD – Physical Activity in Women with Multiple Sclerosis and Generalized Anxiety Disorder
Study Coordinator: Louise Declerck – [email protected]
Knowledge and Perceptions of Exercise Training Among People Living with Multiple Sclerosis